Carla and Wayne’s son Andre was born six weeks’ prematurely. At hospital he was tested for meningitis but discharged and given a clean bill of health. As Andre got older, his parent began to worry something was wrong. He wasn’t hitting the usual milestones and his physical development was delayed. Just before Andre turned two, he was diagnosed with cerebral palsy.
The result threw his parents into shock. They had no idea what this meant for their son or how they could help him. His siblings were worried too. In particular, his older sister who had been bullied at school. She was worried that Andre would get bullied too. Carla called Scope Response and response worker Delia came to their home. Carla had requested permission for her other children to meet Delia so she could explain cerebral palsy in language they could understand.
Delia helped the family understand Andre’s condition. She also told the parents about funding they could access and other charities they could call for support. She gave the children a Scope booklet called ‘Jacob’s Journey’ which explains how cerebral palsy affects a child’s brain. Carla says it has really helped them understand Andre. The local school has also ordered copies of the booklet to ensure its pupils have information about cerebral palsy. Carla thinks this will help remove some of the stigma and make life easier for her children when they get questioned about Andre’s condition.